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1

Are there Characteristics of Infectious Diseases that Raise Special Ethical Issues?

Charles B. Smith, Margaret P. Battin, Jay A. Jacobson, Leslie P. Francis, Jeffrey R. Botkin, Emily P. Asplund, Gretchen J. Domek, Beverly Hawkins

Journal:

Developing World Bioethics

Year:

2004

Language:

english

File:

PDF, 68 KB

english, 2004

2

Ethical Issues and Practical Problems in Preimplantation Genetic Diagnosis

Jeffrey R. Botkin

Journal:

The Journal of Law, Medicine & Ethics

Year:

1998

Language:

english

File:

PDF, 1.28 MB

english, 1998

3

Ethical and public health implications of genetic testing for suicide risk: family and survivor perspectives

Kious, Brent M., Docherty, Anna R., Botkin, Jeffrey R., Brown, Teneille R., Francis, Leslie P., Gray, Douglas D., Keeshin, Brooks R., Stark, Louisa A., Witte, Brieanne, Coon, Hilary

Journal:

Genetics in Medicine

Year:

2020

File:

PDF, 332 KB

2020

4

Human Subjects Protections in Community-Engaged Research: A Research Ethics Framework

Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Year:

2010

Language:

english

File:

PDF, 244 KB

english, 2010

5

Ethical issues in identifying and recruiting participants for familial genetic research

Laura M. Beskow, Jeffrey R. Botkin, Mary Daly, Eric T. Juengst, Lisa Soleymani Lehmann, Jon F. Merz, Rebecca Pentz, Nancy A. Press, Lainie Friedman Ross, Jeremy Sugarman, Lisa R. Susswein, Sharon F. T

Journal:

American Journal of Medical Genetics Part A

Year:

2004

Language:

english

File:

PDF, 106 KB

english, 2004

6

Genetic counseling and ethical issues for autism

William M. McMahon, Bonnie Jeanne Baty, Jeffrey Botkin

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Year:

2006

Language:

english

File:

PDF, 110 KB

english, 2006

7

HOW INFECTIOUS DISEASES GOT LEFT OUT – AND WHAT THIS OMISSION MIGHT HAVE MEANT FOR BIOETHICS

LESLIE P. FRANCIS, MARGARET P. BATTIN, JAY A. JACOBSON, CHARLES B. SMITH, JEFFREY BOTKIN

Journal:

Year:

2005

Language:

english

File:

PDF, 73 KB

english, 2005

8

Nine Key Functions for a Human Subjects Protection Program for Community-Engaged Research: Points to Consider

Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Year:

2010

Language:

english

File:

PDF, 255 KB

english, 2010

9

The Challenges of Collaboration for Academic and Community Partners in a Research Partnership: Points to Consider

Ross, Lainie Friedman, Loup, Allan, Nelson, Robert M., Botkin, Jeffrey R., Kost, Rhonda, Smith, George R., Gehlert, Sarah

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Year:

2010

Language:

english

File:

PDF, 218 KB

english, 2010

10

Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

Botkin, Jeffrey R., Belmont, John W., Berg, Jonathan S., Berkman, Benjamin E., Bombard, Yvonne, Holm, Ingrid A., Levy, Howard P., Ormond, Kelly E., Saal, Howard M., Spinner, Nancy B., Wilfond, Benjami

Journal:

The American Journal of Human Genetics

Year:

2015

Language:

english

File:

PDF, 309 KB

english, 2015

11

Every Child Is Priceless: Debating Effective Newborn Screening Policy

R. Rodney Howell, Nancy Green, Mary Ann Baily, Thomas H. Murray, Virginia Moyer, Steven M. Teutsch and Jeffrey R. Botkin

Journal:

Hastings Center Report

Year:

2009

Language:

english

File:

PDF, 986 KB

english, 2009

12

Concerns About Justification for Fetal Genome Sequencing

Botkin, Jeffrey R., Francis, Leslie P., Rose, Nancy C.

Journal:

American Journal of Bioethics

Year:

2017

Language:

english

File:

PDF, 326 KB

english, 2017

13

Genetic Exceptionalism in Medicine: Clarifying the Differences between Genetic and Nongenetic Tests

Green, Michael J., Botkin, Jeffrey R.

Journal:

Annals of Internal Medicine

Year:

2003

Language:

english

File:

PDF, 98 KB

english, 2003

14

An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots

Rothwell, Erin, Goldenberg, Aaron, Johnson, Erin, Riches, Naomi, Tarini, Beth, Botkin, Jeffrey R.

Journal:

Journal of Empirical Research on Human Research Ethics An International Journal

Year:

2017

Language:

english

File:

PDF, 1016 KB

english, 2017

15

Attitudes toward the genetic testing of children among adults in a Utah-based kindred tested for a BRCA1 mutation

Hamann, Heidi A., Croyle, Robert T., Venne, Vickie L., Baty, Bonnie J., Smith, Ken R., Botkin, Jeffrey R.

Journal:

American Journal of Medical Genetics

Year:

2000

Language:

english

File:

PDF, 115 KB

english, 2000

16

Genetic testing for a BRCA1 mutation: Prophylactic surgery and screening behavior in women 2 years post testing

Jeffrey R. Botkin, Ken R. Smith, Robert T. Croyle, Bonnie J. Baty, Jean E. Wylie, Debra Dutson, Anna Chan, Heidi A. Hamann, Caryn Lerman, Jamie McDonald, Vickie Venne, John H. Ward, Elaine Lyon

Journal:

American Journal of Medical Genetics Part A

Year:

2003

Language:

english

File:

PDF, 140 KB

english, 2003

17

Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption

Vickie L. Venne, Jeffrey R. Botkin, Saundra S. Buys

Journal:

American Journal of Medical Genetics Part A

Year:

2003

Language:

english

File:

PDF, 69 KB

english, 2003

18

Addressing the “petty tyranny” of IRBs

Jeffrey R. Botkin

Journal:

American Journal of Medical Genetics Part A

Year:

2005

Language:

english

File:

PDF, 34 KB

english, 2005

19

Effects of spouses on distress experienced by BRCA1 mutation carriers over time

Jean E. Wylie, Ken R. Smith, Jeffrey R. Botkin

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Year:

2003

Language:

english

File:

PDF, 141 KB

english, 2003

20

Genetic testing and the family

James R. Sorenson, Jeffrey R. Botkin

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Year:

2003

Language:

english

File:

PDF, 36 KB

english, 2003

21

Myocardial perfusion SPECT reconstruction: Receiver operating characteristic comparison of CAD detection accuracy of filtered backprojection reconstruction with all of the clinical imaging information available to readers and solely stress slices iteratively reconstructed with combined compensation

P. Hendrik Pretorius, Michael A. King, Howard C. Gifford, Seth T. Dahlberg, Frederick Spencer, Ellen Simon, Jason Rashkin, Naomi Botkin, William Berndt, Manoj V. Narayanan, Jeffrey A. Leppo

Journal:

Journal of Nuclear Cardiology

Year:

2005

Language:

english

File:

PDF, 297 KB

english, 2005

22

Communication Analysis of BRCA1 Genetic Counseling

Lee Ellington, Debra Roter, William N. Dudley, Bonnie J. Baty, Renn Upchurch, Susan Larson, Jean E. Wylie, Ken R. Smith, Jeffrey R. Botkin

Journal:

Journal of Genetic Counseling

Year:

2005

Language:

english

File:

PDF, 96 KB

english, 2005

23

Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

Aaron J. Goldenberg, Sara Chandros Hull, Jeffrey R. Botkin, Benjamin S. Wilfond

Journal:

The Journal of Pediatrics

Year:

2009

Language:

english

File:

PDF, 249 KB

english, 2009

24

Assessing public attitudes on the retention and use of residual newborn screening blood samples: A focus group study

Erin Rothwell, Rebecca Anderson, Aaron Goldenberg, Michelle H. Lewis, Louisa Stark, Matthew Burbank, Bob Wong, Jeffrey R. Botkin

Journal:

Social Science & Medicine

Year:

2012

Language:

english

File:

PDF, 133 KB

english, 2012

25

Expanding Newborn Screening: Process, Policy, and Priorities

VIRGINIA A. MOYER, NED CALONGE, STEVEN M. TEUTSCH, JEFFREY R. BOTKIN, United States Preventive Services Task Force

Journal:

Hastings Center Report

Year:

2008

Language:

english

File:

PDF, 106 KB

english, 2008

26

Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots

Rothwell, Erin W., Anderson, Rebecca A., Burbank, Matthew J., Goldenberg, Aaron J., Lewis, Michelle Huckaby, Stark, Louisa A., Wong, Bob, Botkin, Jeffrey R.

Journal:

American Journal of Public Health

Year:

2011

Language:

english

File:

PDF, 493 KB

english, 2011

27

Recommendations for returning genomic incidental findings? We need to talk!

Burke, Wylie, Matheny Antommaria, Armand H., Bennett, Robin, Botkin, Jeffrey, Clayton, Ellen Wright, Henderson, Gail E., Holm, Ingrid A., Jarvik, Gail P., Khoury, Muin J., Knoppers, Bartha Maria, Pres

Journal:

Genetics in Medicine

Year:

2013

Language:

english

File:

PDF, 295 KB

english, 2013

28

Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy

Rothwell, Erin, Anderson, Rebecca A., Swoboda, Kathryn J., Stark, Louisa, Botkin, Jeffrey R.

Journal:

American Journal of Medical Genetics Part A

Year:

2013

Language:

english

File:

PDF, 117 KB

english, 2013

29

Public attitudes regarding the use of electronic health information and residual clinical tissues for research

Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca, Stark, Louisa A., Mitchell, Joyce

Journal:

Journal of Community Genetics

Year:

2014

Language:

english

File:

PDF, 194 KB

english, 2014

30

What parents want to know about the storage and use of residual newborn bloodspots

Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca A., Goldenberg, Aaron, Kuppermann, Miriam, Dolan, Siobhan M., Rose, Nancy C., Stark, Louisa

Journal:

American Journal of Medical Genetics Part A

Year:

2014

Language:

english

File:

PDF, 105 KB

english, 2014

31

Proposed regulations for research with biospecimens: Responses from stakeholders at CTSA consortium institutions

Botkin, Jeffrey R., Anderson, Rebecca, Murray, Tom, Beskow, Laura M., Maschke, Karen, Cuttler, Leona

Journal:

American Journal of Medical Genetics Part A

Year:

2014

Language:

english

File:

PDF, 101 KB

english, 2014

32

The Irregular Terrain of Human Subjects Research Regulations

Forster, David, Nelson, Daniel K., Borasky, David, Botkin, Jeffrey R.

Journal:

Hastings Center Report

Year:

2014

Language:

english

File:

PDF, 237 KB

english, 2014

33

Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Hamann, Heidi A., Croyle, Robert T., Smith, Ken R., Quan, Barbara N. M., McCance, Kathryn L., Botkin, Jeffrey R.

Journal:

Journal of Psychosocial Oncology

Year:

2000

Language:

english

File:

PDF, 113 KB

english, 2000

34

Preventing Exploitation in Pediatric Research

Botkin, Jeffrey R.

Journal:

American Journal of Bioethics

Year:

2003

Language:

english

File:

PDF, 111 KB

english, 2003

35

Residual newborn screening samples for research: Parental information needs for decision-making

Rothwell, Erin, Clark, Lauren, Anderson, Rebecca, Botkin, Jeffrey R.

Journal:

Journal for Specialists in Pediatric Nursing

Year:

2013

Language:

english

File:

PDF, 139 KB

english, 2013

36

Performance analysis of image processing algorithms for classification of natural vegetation in the mountains of Southern California

YOOL, Stephen R., Star, Jeffrey L., Estes, John E., BOTKIN, DANIEL B., ECKHARDT, DAVID W., DAVIS, FRANK W.

Journal:

International Journal of Remote Sensing

Year:

1986

Language:

english

File:

PDF, 722 KB

english, 1986

37

Public attitudes regarding the use of electronic health information and residual clinical tissues for research

Botkin, Jeffrey R., Rothwell, Erin, Anderson, Rebecca, Stark, Louisa A., Mitchell, Joyce

Journal:

Journal of Community Genetics

Year:

2015

Language:

english

File:

PDF, 71 KB

english, 2015

38

Attitudes of Parents of Children with Serious Health Conditions regarding Residual Bloodspot Use

Nagaraj, Chinmayee B., Rothwell, Erin, Hart, Kimberly, Latimer, Seth, Schiffman, Joshua D., Botkin, Jeffrey R.

Journal:

Public Health Genomics

Year:

2014

Language:

english

File:

PDF, 162 KB

english, 2014

39

The Legal Concept of Wrongful Life

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Year:

1988

Language:

english

File:

PDF, 919 KB

english, 1988

40

Genetic Testing and Informed Consent-Reply

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Year:

1997

Language:

english

File:

PDF, 344 KB

english, 1997

41

Caring for the Poor

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Year:

1988

Language:

english

File:

PDF, 198 KB

english, 1988

42

Informed Consent for Lumbar Puncture

Botkin, Jeffrey R.

Journal:

Archives of Pediatrics and Adolescent Medicine

Year:

1989

Language:

english

File:

PDF, 957 KB

english, 1989

43

Informed Consent for Lumbar Puncture: An Alternative-Reply

BOTKIN, JEFFREY R.

Journal:

Archives of Pediatrics and Adolescent Medicine

Year:

1990

Language:

english

File:

PDF, 172 KB

english, 1990

44

Fleecing the Taxpayer to Develop a Fire-Safe Cigarette-Reply

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Year:

1988

Language:

english

File:

PDF, 190 KB

english, 1988

45

The Fire-Safe Cigarette

Botkin, Jeffrey R.

Journal:

JAMA The Journal of the American Medical Association

Year:

1988

Language:

english

File:

PDF, 627 KB

english, 1988

46

Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research

Hull, Sara Chandros, Sharp, Richard R., Botkin, Jeffrey R., Brown, Mark, Hughes, Mark, Sugarman, Jeremy, Schwinn, Debra, Sankar, Pamela, Bolcic-Jankovic, Dragana, Clarridge, Brian R., Wilfond, Benjami

Journal:

American Journal of Bioethics

Year:

2008

Language:

english

File:

PDF, 454 KB

english, 2008

47

Outcomes of interest in evidence-based evaluations of genetic tests

Botkin, Jeffrey R, Teutsch, Steven M, Kaye, Celia I, Hayes, Maxine, Haddow, James E, Bradley, Linda A, Szegda, Kathleen, Dotson, W David

Journal:

Genetics in Medicine

Year:

2010

Language:

english

File:

PDF, 248 KB

english, 2010

48

A framework for key considerations regarding point-of-care screening of newborns

Kemper, Alex R., Kus, Christopher A., Ostrander, Robert J., Comeau, Anne Marie, Boyle, Coleen A., Dougherty, Denise, Mann, Marie Y., Botkin, Jeffrey R., Green, Nancy S.

Journal:

Genetics in Medicine

Year:

2012

Language:

english

File:

PDF, 227 KB

english, 2012

49

Developing a National Registry for conditions identifiable through newborn screening

Botkin, Jeffrey R, Anderson, Rebecca, Staes, Catherine, Longo, Nicola

Journal:

Genetics in Medicine

Year:

2009

Language:

english

File:

PDF, 219 KB

english, 2009

50

Crushing Consent Under the Weight of Expectations

Botkin, Jeffrey R.

Journal:

American Journal of Bioethics

Year:

2015

Language:

english

File:

PDF, 297 KB

english, 2015